Comedy Night /Chinese Auction Benefit to Help Build The Honey House !
https://www.facebook.com/events/483810361728842/
HELP BUILD THE HONEY HOUSE: Eight year old Brian Ilg of Patchogue was born with Dystrophic Epidermolysis Bullosa, a debilitating skin disorder. Described as "the worst disease you've NEVER heard of," the continuous blistering caused by this condition is disfiguring and painful; any kind of friction causes wounds to develop. Brian's care entails a daily, three hour-long dressing change of the bandages that protect his skin from injury and treat the wounds that affect 60% of his body. ! We are building a portable medical treatment unit for Brian--a little house on wheels, with dedicated space for his medical care, separate from his family's living area, which will reduce the spread of infection. The house will have a walk-in whirlpool bathtub in which Brian can submerge himself to clean and gently debride his wounds, which will reduce his bath-time pain by 50%-- there's no drug we could give him that would provide that much pain relief; it's a safe, effective, non-narcotic solution to the every day agony caused by bathing.
Tickets to this event can be purchased in advance for $20 per person via Paypal to:
Gigiebaby@aol.com
Please include your name, full mailing address and the number of tickets needed in the memo of the payment !
If you would like to pay by cash or check or to make a donation towards our auction or to The Honey House, please send an email to Stacey ONeill at MyGoldiLockets@aol.com to make arrangements !
Tickets will be sold at the door for $25 per person.
**Chinese auction!!! One lucky door prize winner will be receiving an Origami Owl locket just in time for Valentines Day ! **
This post was contributed by a community member. The views expressed here are the author's own.
We’ve removed the ability to reply as we work to make improvements. Learn more here
The views expressed in this post are the author's own. Want to post on Patch?
More from Patchogue
Politics & Government|